Gem of the Week: When Doctors Are Wrong

Morrissey/<a href="http://www.flickr.com/photos/morrissey/5503915810/sizes/l/in/photostream/">Flickr</a>

Fight disinformation: Sign up for the free Mother Jones Daily newsletter and follow the news that matters.


This week’s gem goes to the Washington Post, for reporting on one man’s fight against several doctors’ false diagnoses of alcohol-induced cirrhosis.

Oregon man Jeff Williams was admitted to a Portland hospital with internal bleeding, cirrhosis of the liver, and low insulin due to newly diagnosed diabetes. Doctors, perhaps relying on what they saw most frequently, told Williams’s family that he had advanced alcoholism. His family protested, and Williams himself admitted some college-age overindulging, but said he was only a social drinker. Doctors thought he was just in denial.

After being discharged, Williams went to a friend’s ranch in eastern Oregon, bringing along his new insulin shots to take care of his diabetes. His friend, a retired doctor, had a Merck Manual in his bookshelf. While looking for causes of liver failure, Williams and his friend found a disease called hereditary hemochromatosis. Hereditary hemochromatosis causes the body to absorb too much iron from the gut, and distribute it to various organs, which leads to their failure. Most commonly, liver cirrhosis.

Williams called his HMO and demanded to be tested for the disease. The tests came back positive. “I was just so pissed,” Williams told the Post. Doctors had actually tested his iron levels, and found them very high. However, they thought it was a consequence of his cirrhosis, so never looked into genetic testing. Luckily, treatment for the condition was fairly straightforward: get blood drawn weekly to reduce iron levels. And in saving his own life, Williams saved another: that of his twin sister, who also has the disease, though she had not shown symptoms. Other family members—an older brother and Williams’s nephew—are carriers. Without Williams’s tenacity, he might have never discovered (and subsequently been treated for) his condition.

This story reminded me of the excellent book by Jerome Groopman, How Doctors Think. And though many patients may tend to misdiagnose themselves with exotic conditions (hanta instead of the flu, for example), this story is a good reminder that doctors come with their own individual prejudices and lens of experience.

Source: “Medical Mystery: Alcoholism Didn’t Cause Man’s Diabetes and Cirrhosis,” by Sandra Boodman (Washington Post, June 13, 2011)

We've never been very good at being conservative.

And usually, that serves us well in doing the ambitious, hard-hitting journalism that you turn to Mother Jones for. But it also means we can't afford to come up short when it comes to scratching together the funds it takes to keep our team firing on all cylinders, and the truth is, we finished our budgeting cycle on June 30 about $100,000 short of our online goal.

This is no time to come up short. It's time to fight like hell, as our namesake would tell us to do, for a democracy where minority rule cannot impose an extreme agenda, where facts matter, and where accountability has a chance at the polls and in the press. If you value our reporting and you can right now, please help us dig out of the $100,000 hole we're starting our new budgeting cycle in with an always-needed and always-appreciated donation today.

payment methods

We've never been very good at being conservative.

And usually, that serves us well in doing the ambitious, hard-hitting journalism that you turn to Mother Jones for. But it also means we can't afford to come up short when it comes to scratching together the funds it takes to keep our team firing on all cylinders, and the truth is, we finished our budgeting cycle on June 30 about $100,000 short of our online goal.

This is no time to come up short. It's time to fight like hell, as our namesake would tell us to do, for a democracy where minority rule cannot impose an extreme agenda, where facts matter, and where accountability has a chance at the polls and in the press. If you value our reporting and you can right now, please help us dig out of the $100,000 hole we're starting our new budgeting cycle in with an always-needed and always-appreciated donation today.

payment methods

We Recommend

Latest

Sign up for our free newsletter

Subscribe to the Mother Jones Daily to have our top stories delivered directly to your inbox.

Get our award-winning magazine

Save big on a full year of investigations, ideas, and insights.

Subscribe

Support our journalism

Help Mother Jones' reporters dig deep with a tax-deductible donation.

Donate